“This experience confirmed my interest in healthcare, communication disorders and aging.”

Dr. Bouvier is a Postdoctoral Fellow in the Bulbar Function Lab at Sunnybrook Research Institute (SRI), under the supervision of scientist Dr. Yana Yunusova.

Her speech acoustics research is helping to advance early detection and monitoring of bulbar signs in Amyotrophic Lateral Sclerosis (ALS), a progressive and debilitating neurodegenerative disease. June is ALS Awareness Month.

The onset of bulbar dysfunction, which includes symptoms such as speech and swallowing difficulties, marks a turning point in the progression of ALS as the development of these symptoms are associated with a reduction in quality of life and life expectancy.

“The development of effective assessment tools targeting bulbar dysfunction in ALS is urgently needed to improve timely access to clinical care, intervention strategies and clinical trials.”

Dr. Bouvier’s research uses speech recordings and machine learning to develop artificial intelligence (AI)-based technologies for the early detection and tracking of bulbar ALS. Similar work has been done among English-speaking populations, and her goal is to develop the world’s first AI-based diagnostic algorithm for Quebec French, to help with the early detection of bulbar ALS in the French-speaking population.

“By developing this tool, I hope to help reduce the existing gaps in knowledge and care between English and French speakers.”

The Bulbar Function lab at SRI provides the ideal setting to execute this study, which leverages deep strengths in AI, machine learning and acoustic analyses of speech. The close collaborations of the lab with nation-wide and international ALS clinics are also helping advance the project.

“Research in the field of ALS is of particular interest to me because it allows me to combine many of my research interests — to collaborate closely with healthcare professionals, to contribute to the establishment of better health care access, assessment and care, and to improve the quality of life for patients,” explains Dr. Bouvier.

“Helping families better understand and facilitate care for their loved ones with neurodegenerative disease is at the heart of my motivation to do this research.”

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Brianna Marshall is the Occupational Therapist (OT) in Sunnybrook’s ALS Clinic, which is the largest in Canada and one of the largest ALS clinics around the world.

Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease, is a progressive and debilitating neuromuscular disorder. Over time, the brain stops sending messages to voluntary muscles and people living with ALS eventually lose the ability to walk, talk, eat, move, and breathe. June is ALS Awareness Month.

“ALS is a devastating diagnosis for patients and families, and there is no known cure,” says Brianna. “Sunnybrook is at the forefront of ALS research working to change that through many ongoing studies and clinical trials. In the meantime, our patients require specialized care and supports across all areas of the healthcare system.”

Brianna works with more than 650 individuals living with ALS and related diagnoses.

“I have learned so much from our patients, their activism, creativity, kindness, and humour – even in the face of impossible odds and heartbreaking choices.”

As the ALS Clinic’s OT, Brianna helps support patients with strategies for their daily activities.

“This could be prescribing custom power wheelchairs, problem-solving home modifications, making exercise recommendations, creating individualized strategies for energy conservation, or recommending devices that compensate for decreased hand function,” she explains.

“The ALS Clinic team at Sunnybrook is nothing short of amazing – it is the most collaborative environment I have ever been a part of. Everyday that I come to work, I’m learning from experts in all of the clinic’s medical and allied health disciplines and working with these team members to improve our clinic processes and the care we provide.

I am honoured that many patients share their experiences with me and trust me with the day-to-day realities of their lives.”

Learn more about Sunnybrook’s ALS Clinic: sunnybrook.ca/ALS

The post ‘A devastating diagnosis:’ Caring for patients and families in Sunnybrook’s ALS Clinic appeared first on Your Health Matters.